Edtech.com's Summary

Oregon Health & Science University is hiring a Research Administrator 1 / OCCYSHN Family Involvement Manager. This role leads the Family Involvement Program within the Oregon Center for Children and Youth with Special Health Needs, administering grant deliverables, promoting family engagement in Title V activities, and managing programs that support children and youth with special health needs. The manager also supervises staff, coordinates with state and federal agencies, and ensures family voices are integrated into healthcare systems.

Highlights

Leads the Family Involvement Program under the Family-to-Family Health Information Center grant and supports Title V Block Grant activities for children and youth with special health needs.
Develops strategies to include family voices in community-based care systems and manages ongoing family involvement initiatives.
Coordinates and supervises staff, including parent partners and the LEND Family Discipline Director.
Manages grant operations, including budget monitoring, reporting to HRSA, and facilitating outreach and training events.
Represents family perspectives at the state level, including participation in federal Maternal and Child Health Bureau initiatives.
Requires lived experience parenting a child with special physical, developmental, or behavioral health needs.
Must have a bachelor's degree in a related field with 5 years of relevant experience, including working in programs serving children with special health needs.
Strong skills in public speaking, organization, writing, and building partnerships; ability to work independently with OHSU-supported software.
Preferred qualifications include a master’s degree, experience in grant management, supervision, and knowledge of MCHB Title V programs and healthcare reform impacts.
Salary range commensurate with experience: $74,194 to $118,539 annually; flexible schedule with some state and national travel required.

Research Administrator 1 / OCCYSHN Family Involvement Manager Full Description

Department Overview:

About The Institute on Development and Disability (IDD)
Link https://www.ohsu.edu/institute-on-development-and-disability/about-us

The Institute on Development and Disability within the Department of Pediatrics at OHSU works with patients, families, clinicians, researchers and many other professionals to meet the goal of improving the lives of people with disabilities. We perform research and care to support every patient, from premature babies to older adults, facing changes in life due to the onset of disabling conditions. With more than 100 years of practice, we understand how to best meet the needs of our patients and their families in Oregon and beyond. Function/Duties of Position:

The OCCYSHN Family Involvement Manager position resides within the Oregon Center of Children and Youth with Special Health Needs (OCCYSHN) in the Institute on Development & Disability (IDD) at the Oregon Health & Science University (OHSU). The Family Involvement Program (FIP) Manager administers and leads the work fulfilling the deliverables the Family-to-Family Health Information Center grant (ORF2FHIC) and supports Oregon’s Maternal and Child Health Bureau Title V Block Grant program for children and youth with special health needs (CYSHCN) through the development, planning, and implementation of strategies and activities to assure ongoing family engagement and involvement in all Title V activities. In addition, this position will bring that same assurance to all IDD-OCCYSHN partnered activities, including the LEND Family Discipline.

Title V Activities:The position facilitates and promotes family-professional partnerships and family engagement on behalf of the Title V CYSHCN Block Grant program, and supports all Title V activities in relation to the needs and requirements for family involvement.

The FIP Manager:

develops strategies and activities to ensure inclusion of family voices within community-based systems of care
develops and manages programs for ongoing involvement of families in all Title V, and IDD-OCCYSHN partnered, activities
monitors and evaluates family involvement activities and increases/improves access to health information and services for CYSHCN and their families.

The Family Involvement Manager will coordinate and manage all activities, sub-functions and organizational needs and priorities of the Family Involvement Program both within OCCYSHN and at the State Level. The Family Involvement Manager is a state leader for Family of Children and Youth with Special Health Needs and will frequently represent the family voice at state level meetings and at the state capitol, and will participate in initiatives of the federal Maternal and Child Health Bureau (MCHB).

ORF2FHIC Responsibilities: The ORF2HIC is a federally funded grant project designed to improve access to health information and services for CYSHCN and their families. The OCCYSHN Family Involvement Manager may serve as the PI for the ORF2FHIC, based on qualifications. If they are not eligible to be faculty at OHSU, the OCCYSHN Director will serve as the grant PI, with the FIP manager responsible for day-to-day management of programming, and supervision of parent partners.

The FIP Manager:

monitors the operations budget in coordination with OHSU SAT
oversees the development and facilitation of the project’s goals, scope of work, materials and outreach
oversees all hiring, training, and supervision of staff
assure fidelity to grant requirements including timely data reporting via the Health Resources and Services Administration (HRSA) Electronic Handbook
attend required grant-related meetings, including out-of-state
As necessary, conducts F2F trainings, facilitates F2F events, participates in outreach activities, and supports families who call the F2F line or submit referrals

IDD-OCCYSHN Activities: the Family Involvement Manager will oversee the supervision of the LEND Family Discipline Director.

*Postion requires lived experience parenting a child with special physical, developmental, or behavioral health needs.* Required Qualifications:

Bachelor’s in related field plus 5 years’ of relevant experience.
Parenting, or caring for children/youth with special healthcare needs.
Two to 5 years working in programs or organizations that provide services to, or work on behalf of CYSHN and their families.
Experience in building and supporting networks.
Public speaking.
Strong organizational and writing skills.
Proven ability to work with diverse populations and a multi-disciplinary team/staff.
Ability to initiate and maintain partnerships.
Ability to independently initiate and manage work.
Knowledge and ability to work with independently with computers and OHSU supported software applications.

Preferred Qualifications:

Master’s degree
Providing staff supervision and coordination of staff activities
Experience developing, managing and evaluating programs.
Experience in grant development, coordination and management
Newsletter/communications
Knowledge of MCHB Title V programs
Knowledge of health care reform as impacts CYSHCN and their families
Knowledge and understanding of systems of support for CYSHCN

Additional Details:
Upload cover letter and resume.

Cover Letter :

Please describe your parenting or caregiving experience of a child, youth, or young adult with disabilities or special health needs. Include your experience navigating disability systems in Oregon or another state.”
“Applications without a cover letter will not be considered.”

Resume:

Please be sure to include months and years (MM/YYYY format) to the resume for jobs/experience.

All are welcome: Oregon Health & Science University values a diverse and culturally competent workforce. We are proud of our commitment to being an equal opportunity, affirmative action organization that does not discriminate against applicants on the basis of any protected class status, including disability status and protected veteran status. Individuals with diverse backgrounds and those who promote diversity and a culture of inclusion are encouraged to apply. To request reasonable accommodation contact the Affirmative Action and Equal Opportunity Department at 503-494-5148 or aaeo@ohsu.edu.

Original Job Description

Department Overview:

About The Institute on Development and Disability (IDD)
Link https://www.ohsu.edu/institute-on-development-and-disability/about-us

The FIP Manager:

develops strategies and activities to ensure inclusion of family voices within community-based systems of care
develops and manages programs for ongoing involvement of families in all Title V, and IDD-OCCYSHN partnered, activities
monitors and evaluates family involvement activities and increases/improves access to health information and services for CYSHCN and their families.

The FIP Manager:

monitors the operations budget in coordination with OHSU SAT
oversees the development and facilitation of the project’s goals, scope of work, materials and outreach
oversees all hiring, training, and supervision of staff
assure fidelity to grant requirements including timely data reporting via the Health Resources and Services Administration (HRSA) Electronic Handbook
attend required grant-related meetings, including out-of-state
As necessary, conducts F2F trainings, facilitates F2F events, participates in outreach activities, and supports families who call the F2F line or submit referrals

IDD-OCCYSHN Activities: the Family Involvement Manager will oversee the supervision of the LEND Family Discipline Director.

*Postion requires lived experience parenting a child with special physical, developmental, or behavioral health needs.* Required Qualifications:

Bachelor’s in related field plus 5 years’ of relevant experience.
Parenting, or caring for children/youth with special healthcare needs.
Two to 5 years working in programs or organizations that provide services to, or work on behalf of CYSHN and their families.
Experience in building and supporting networks.
Public speaking.
Strong organizational and writing skills.
Proven ability to work with diverse populations and a multi-disciplinary team/staff.
Ability to initiate and maintain partnerships.
Ability to independently initiate and manage work.
Knowledge and ability to work with independently with computers and OHSU supported software applications.

Preferred Qualifications:

Master’s degree
Providing staff supervision and coordination of staff activities
Experience developing, managing and evaluating programs.
Experience in grant development, coordination and management
Newsletter/communications
Knowledge of MCHB Title V programs
Knowledge of health care reform as impacts CYSHCN and their families
Knowledge and understanding of systems of support for CYSHCN

Additional Details:
Upload cover letter and resume.

Cover Letter :

Please describe your parenting or caregiving experience of a child, youth, or young adult with disabilities or special health needs. Include your experience navigating disability systems in Oregon or another state.”
“Applications without a cover letter will not be considered.”

Resume:

Please be sure to include months and years (MM/YYYY format) to the resume for jobs/experience.

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Research Administrator 1 / OCCYSHN Family Involvement Manager

Edtech.com's Summary

Research Administrator 1 / OCCYSHN Family Involvement Manager Full Description

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