Edtech.com's Summary

Oregon Health & Science University is hiring a Research Project Coordinator / Title V Family Involvement Coordinator. This position coordinates Title V Family Involvement activities related to block grant strategies and promotes family leadership in healthcare policy by collaborating with internal programs and external partners.

Highlights

Coordinate Title V Family Involvement work, including block grant strategies and writing.
Contribute to strategic planning and implementation for family engagement within OCCYSHN and IDD programs.
Promote family leadership and family-professional partnerships at state and national levels.
Provide technical assistance to partner organizations and develop tools to support family leadership.
Must have lived experience parenting a child with special health needs.
Required qualifications include a Master’s degree or equivalent with experience in public health family engagement and Maternal Child and Health Bureau systems.
Strong public speaking, organizational, writing, and networking skills essential.
Experience working with diverse populations and multidisciplinary teams required.
Ability to work independently and use OHSU-supported software applications.
Compensation is commensurate with experience, education, and internal equity, ranging from $61,318 to $97,968 full-time equivalent; position is part-time (20 hours/week).

Research Project Coordinator / Title V Family Involvement Coordinator Full Description

Department Overview:

About The Institute on Development and Disability (IDD)
Link https://www.ohsu.edu/institute-on-development-and-disability/about-us

The Institute on Development and Disability within the Department of Pediatrics at OHSU works with patients, families, clinicians, researchers and many other professionals to meet the goal of improving the lives of people with disabilities. We perform research and care to support every patient, from premature babies to older adults, facing changes in life due to the onset of disabling conditions. With more than 100 years of practice, we understand how to best meet the needs of our patients and their families in Oregon and beyond. Function/Duties of Position:

The OCCYSHN Title V Family Involvement Coordinator position resides within the Oregon Center of Children and Youth with Special Health Needs (OCCYSHN) in the Institute on Development & Disability (IDD) at the Oregon Health & Science University (OHSU). This position exists to fulfill the mandates of the Maternal and Child Health Bureau Title V Block Grant program for children with special health care needs program and other objectives and goals of the OCCYSHN/IDD/OHSU.

The Title V Family Involvement Coordinator reports to the OCCYSHN Family Involvement Manager and will serve as the primary coordinator for all Title V Family Involvement work related to block grant strategies, activities, projects, and during the block grant writing itself. As part of the Family Involvement Program, the Title V Family Involvement Coordinator will contribute to strategic planning efforts, including the development, planning, and implementation of strategies and activities to ensure ongoing, meaningful family involvement in OCCYSHN, Title V, and IDD-OCCYSHN partnered activities.

In addition, the position will use promote family leadership in Oregon systems, generally, and family-professional partnerships in health care policy. This will include participation in state and national level meetings/committees, creation of tools and guides to promote family leadership, and providing technical assistance to external partner organizations as needed. To do this, the Title V Family Involvement Coordinator will use current literature and tools from recognized advocacy and health care entities such as: Family Voices, Federation of Families, Association of Maternal Child Health Programs, Institute on Family Centered Care, American Academy of Pediatrics and National Academy for State Health Policy.

*Postion requires lived experience parenting a child with special physical, developmental, or behavioral health needs.* Required Qualifications:

Master’s degree in relevant field AND 1 year of relevant experience OR Equivalent combination of Bachelor's in relevant field in conjunction with training and experience may be considered.
Requires specific experience related to family engagement in public health systems.
Lived experience as parent of a child or young adult with special health needs.
Two years’ experience with Maternal Child and Health Bureau (MCHB) systems.
Five years’ working in programs or organizations that provide services to, or work on behalf of CYSHN and their families.
Experience in building and supporting networks.
Public speaking and/or training groups of people.
Strong organizational skills.
Strong plain language writing and editing skills.
Proven ability to work with diverse populations and multi-disciplinary teams.
Ability to initiate and maintain partnerships with individuals and organizations.
Ability to independently initiate and manage work.
Knowledge of. and ability to work independently with, computers and OHSU-supported software applications.

Preferred Qualifications:

Master’s Degree
Experience developing, managing and evaluating programs
Experience in grant development, coordination and management
Knowledge of MCHB Title V programs
Knowledge and understanding of Oregon’s systems of support for CYSHCN

Additional Details:
Upload cover letter and resume.
Cover letter:

Please describe your parenting or caregiving experience of a child, youth, or young adult with disabilities or special health needs. Include your experience navigating disability systems in Oregon or another state.”
“Applications without a cover letter will not be considered.”

Resume:

Please be sure to include months and years (MM/YYYY format) to the resume for jobs/experience. All are welcome: Oregon Health & Science University values a diverse and culturally competent workforce. We are proud of our commitment to being an equal opportunity, affirmative action organization that does not discriminate against applicants on the basis of any protected class status, including disability status and protected veteran status. Individuals with diverse backgrounds and those who promote diversity and a culture of inclusion are encouraged to apply. To request reasonable accommodation contact the Affirmative Action and Equal Opportunity Department at 503-494-5148 or aaeo@ohsu.edu.

Original Job Description

Department Overview:

About The Institute on Development and Disability (IDD)
Link https://www.ohsu.edu/institute-on-development-and-disability/about-us

*Postion requires lived experience parenting a child with special physical, developmental, or behavioral health needs.* Required Qualifications:

Master’s degree in relevant field AND 1 year of relevant experience OR Equivalent combination of Bachelor's in relevant field in conjunction with training and experience may be considered.
Requires specific experience related to family engagement in public health systems.
Lived experience as parent of a child or young adult with special health needs.
Two years’ experience with Maternal Child and Health Bureau (MCHB) systems.
Five years’ working in programs or organizations that provide services to, or work on behalf of CYSHN and their families.
Experience in building and supporting networks.
Public speaking and/or training groups of people.
Strong organizational skills.
Strong plain language writing and editing skills.
Proven ability to work with diverse populations and multi-disciplinary teams.
Ability to initiate and maintain partnerships with individuals and organizations.
Ability to independently initiate and manage work.
Knowledge of. and ability to work independently with, computers and OHSU-supported software applications.

Preferred Qualifications:

Master’s Degree
Experience developing, managing and evaluating programs
Experience in grant development, coordination and management
Knowledge of MCHB Title V programs
Knowledge and understanding of Oregon’s systems of support for CYSHCN

Additional Details:
Upload cover letter and resume.
Cover letter:

Please describe your parenting or caregiving experience of a child, youth, or young adult with disabilities or special health needs. Include your experience navigating disability systems in Oregon or another state.”
“Applications without a cover letter will not be considered.”

Resume:

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Research Project Coordinator / Title V Family Involvement Coordinator

Edtech.com's Summary

Research Project Coordinator / Title V Family Involvement Coordinator Full Description

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